Moving to adult health care

The continuing care process for children is a three phase activity: assessment, decision-making and provision. A health needs assessment is completed with parents by a nominated nurse and this is collated with reports, assessments and information from health, social care and education. Then a multi-agency panel meets to decide whether or not a child has an NHS continuing care need, this panel is called the Children’s Eligibility Panel.

After a decision has been taken about eligibility, the agencies (health, social care and education) and any other partners will undertake the planning of the continuing care package beginning with agreeing the continuing care resource. Families can request a Personal Health Budget for their child or young person’s continuing care package. Children and young people’s continuing care needs are best addressed holistically by all the agencies that are involved in providing them with public services or care.

Why might my child/young person need continuing care?

Your child/ young person may have complex health needs which are unmet by existing services and require additional support in the community and at home. Some examples of these complex needs are: Tracheostomy management; Long term ventilation needs; Peritoneal Dialysis; Total Parenteral Nutrition; and/or Rehabilitation packages.

This list is not exhaustive and will not mean necessarily that your child/ young person will meet the criteria for Children’s Continuing Care

Resources

Aim to improve this information

We are working with colleagues to improve this information.

Some of the actions we will be taking include:

1. Putting a table together of key services involved with a young person with complex health needs and up to what age they support.

2. Publishing a flow chart of the transition.

3. Adding advice from parent carers in regards to managing the transition.

If you have any other suggestions please let us know how we could improve this by emailing [email protected]