National Charities

This list is organised alphabetically by conditions or topics.


1. ADHD

ADDISS

ADDISS stand for The National Attention Deficit Disorder Information and Support Service. They provide people-friendly information and resources about Attention Deficit Hyperactivity Disorder to anyone who needs assistance - parents, sufferers, teachers or health professionals. Whatever you're looking for in ADHD, they will do their best to help.

HACSG

The HACSG has a great deal of information available related to Food Additives, Food Intolerance, Omega Fatty Acids, Vitamins & Minerals and how they can impact on hyperactivity and ADHD.


2. ADVOCACY

Independent Lives

Our Integrated Advocacy service works in partnership with local GP surgeries supporting patients to take action to resolve social issues that are impacting on their health and wellbeing. Supported by an Advocacy Coordinator and a team of Volunteer Advocates we work with patients to help speak up, secure their rights, represent their interests and access the services they need in order to improve their health and wellbeing.

Making Ourselves Heard

Participation Works enables organisations to effectively involve children and young people in the development, delivery and evaluation of services that affect their lives.

Signposts Advocacy Service – Burgess Hill

If you have an issue or a problem you would like help with, Impact Advocacy may be able to give you 1:1 support.

Speak Up

Speak Up is a self-advocacy group run for and by people with learning disabilities with some help from a paid supporter. They aim to support each other to develop the skills and knowledge to speak up for themselves about things that affect them and thus improve their lives. Wednesdays and Thursdays 9.30am – 2.30pm in Burgess Hill.

Triangle Advocacy

Provides advocacy to children and young people with a wide range of needs. Range of services including specialist expert witness reports, forensic interviewing, intermediary services, advocacy and support.


3. ARTHRITIS

Arthritis Care

Provides information and support on a range of issues related to living with arthritis, including self-management programmes to help people cope with their condition.


4. AUTISM

The National Autistic Society

We are the leading UK charity for people with autism (including Asperger syndrome) and their families. We provide information, support and pioneering services, and campaign for a better world for people with autism.

Yellow Lady Bugs

A national charity in Australia dedicated to the happiness, success and celebration of autistic girls and women


5. BEHAVIOUR

The Challenging Behaviour Foundation

We are the charity for people with severe learning disabilities whose behaviour challenges. We’re making a difference to the lives of children and adults across the UK through information about challenging behaviour, peer support for family carers and professionals, supporting families by phone or email, running workshops to reduce challenging behaviour and speaking up for families nationally.

Learning Assessment & Neurocare Centre

Specialises in helping children, adolescents and adults with neuro-biological conditions, especially ADHD and related conditions, Asperger and Tourette syndrome, dyslexia, dyspraxia, etc. GP referral required.

The Root of It

The Root Of It provide special needs and school improvement support services for schools, colleges and settings across the UK, getting to the root of the problem and addressing it. We are the service that cares about your children and young people. With no thresholds and visits when you need them, we take away the pain you experience historically associated with waiting for statutory services.

Triangle

Provides individual outreach and therapeutic support for children and young people up to age 12 presenting severely challenging behaviour. Caters for children with additional physical, sensory, learning and communication difficulties, as well as challenging behaviour.

West Sussex CAHMS (Child & Adolescent Mental Health Services)

This service covers the whole of West Sussex and provides assessments and help including family work and/or individual therapy. Referrals may be made via GP, other health professionals or Social Services.

Main number – 01903 843035

Area A – 07765 075951 – (Monday to Friday 12 – 1pm)

Area B – 07786 110157 – (Monday to Friday 12 – 1pm)

Area C – 07917 053468 – (Monday to Friday 12 – 1pm)


6. BLINDNESS

The Cerebral Visual Impairment Society (CVI)

Cerebral Visual Impairment (commonly referred to as CVI) is a form of visual impairment caused by the brain not being able to process information from the eyes passing along the visual pathways in the brain. It is the commonest cause of visual impairment in children in the developed world.

4SIGHT

We are a charity supporting people with sight loss and a membership organisation, based in West Sussex. We provide services to improve health and wellbeing, promote independence and prevent social isolation. We also provide information, advice and practical support to anyone with sight impairment, carers, families and other organisations.

Blatchington Court Trust

Promotes the education (including social and physical training) and employment of visually impaired young people under 30 from Sussex.

Look Sussex

We are a very active charity with frequent events going on throughout the year for the whole family, including Farm visits, Camping trips, Swimming, Christmas celebrations etc. We also work very closely with Blatchington Court Trust and would like to thank them very much for the financial support, which they have been providing yearly, without which we would not be able to continue with our activities.

National Blind Children’s Society

Information and support to enable blind and partially sighted children and young people to achieve their educational and recreational goals. They offer family support, movement matters service, educational support, access to technology and other services.

Royal London Society for the Blind

RLSB has existed to stop childhood sight loss becoming a lifelong disability. We don’t just help young people cope with being blind; we help young people live beyond sight loss. Through an expert blend of education, sport, creative and developmental services, delivered in London and the south east, we support blind and partially sighted young people to unleash their potential and live and learn for the life they want.

RNIB (Royal National Institute of Blind People)

We're RNIB and we're here for everyone affected by sight loss. Whether you're losing your sight or you're blind or partially sighted, our practical and emotional support can help you face the future with confidence. Promotes inclusion, support and independence.


7. BRAIN INJURY

BIBIC (British Institute for Brain Injured Children)

Bibic has been transforming the lives of children and their families since 1972. Its mission is to help children aged from six months to 18 years with conditions affecting their social, communication and learning abilities to achieve their potential for a happier and more fulfilled life.

CBIT (Child Brain Injury Trust)

The Child Brain Injury Trust is the charity that supports children, young people, their families and professionals and helps them come to terms with what has happened and how to deal with the uncertainty that the future may hold.

Headway

To promote understanding of all aspects of brain injury and to provide information, support and services to people with a brain injury, their families and carers. In addition, Headway will campaign to reduce incidence of brain injury. Supporting people with brain injuries and their carers.

HemiHelp (Hemiplegia Support Group)

Provides support and information to children and young people with hemiplegia and their families: quarterly newsletters, workshops, activity days.


8. BULLYING

Anti Bullying Alliance

We can provide expertise in relation to all forms of bullying between children and young people. We have experience in working with a vast range of clients including the government, youth charities, journalists, documentary makers, public services, schools and colleges, children's homes, young offender institutes and businesses. If an expert member of our team is unable to assist - we can certainly put you in touch with someone who can.

Bullying UK

Bullying UK is part of Family Lives and offers advice and support via a confidential helpline for children and young people as well as parents and schools.


9. CARERS/EMOTIONAL SUPPORT

Carers Support Service

Many carers do not see themselves as such because they see themselves as a parent, spouse or partner, son or daughter, relative, friend or neighbour. 1 in 10 of the population are carers. As a result carers often miss out on services, support, advice and benefits which may be available. Carers Support can help carers from all communities across West Sussex by providing practical information and emotional support.

Cross Roads Care – South Central

Crossroads is a national network of local charities employing over 5,000 trained professionals and helping over 35,000 people. We are the UK’s leading provider of support for carers and the people they care for.

Family Helpline

A free helpline offering support on a variety of issues, such as family problems, teenagers, drugs/alcohol, stress, behaviour, relationships, separation, depression and isolation.

Fegans

Fegans cares holistically for the whole family, through counselling children and supporting parents.

Home Start

Home-Start plays a vital role supporting parents and giving their children the best possible start in life. Our positive impact makes a real difference to the lives of children and families in communities across the UK. Offers emotional and practical help to families who have at least one child under the age of five.

Parentline UK

Family Lives is a national family support charity providing help and support in all aspects of family life. We’re here for you 24 hours a day, seven days a week. We listen, support and never judge. We believe that happy children come from happy families.

SCOPE Navigate

Navigate is a national mentoring service run by SCOPE, that provides online emotional support for parents and carers of disabled children who are finding out about their child’s additional needs.

SIGNPOSTS Counselling/Parent Carers Support – Burgess Hill

A private space to share any problems or worries or if you have been upset. Every Monday between 1.30pm and3.30pm by arrangement.


10. CEREBRAL PALSY

SCOPE

Organisation for people with cerebral palsy and associated disabilities, their families, carers and professionals. They provide information, support and advice.


11. CONTINENCE

ERIC (Education & Resources for Improving Childhood Continence)

ERIC is the only UK charity dedicated to improving the lives of children and young people with ongoing continence problems. For many of the children and families who suffer with these issues, ERIC is the only place where they can come to for support, understanding and to access the information they need. We also work hard to improve services for children with continence needs in health and education settings, and to drive up standards of training through our acclaimed seminars for professionals.


12 DEAFBLIND

Deafblind UK

Information and advice on dual sensory loss, 24 hour helpline, counselling. Teaches touch-based communication systems. Visits the deafblind.

SENSE

We are a national charity that supports and campaigns for children and adults who are deafblind or have sensory impairments. The organisation supporting children, adults, their families and carers.


13 DEAFNESS

Action for Deafness

Action for Deafness provides advice, support, information and services to enable Deaf, deafened, hard of hearing and deafblind people to lead independent lives.

Action on Hearing Loss (formerly RNID)

Offers a range of services, including information, awareness training, campaigning, residential care, communication services, employment services, telephone relay service (Typetalk), Tinnitus Helpline.

British Deaf Association

The BDA's aim is to achieve equality for Deaf people. We work with local Deaf communities and campaign for local authorities to adopt our BSL Charter. We produce reports in response to Government policies and also provide training to empower Deaf people, especially in BSL teaching

DELTA (Deaf Education through Listening and Talking)

We know that the vast majority of deaf children can learn to listen and talk. We believe that this option should be available to all deaf children. We work to make that happen by providing information on the Natural Aural Approach and organizing meetings for families across the country who want to help their deaf children listen and talk. We run summer schools for the whole family so that they can learn the skills and techniques they need. Informing local education authorities, doctors, health visitors, audiologists and other professionals who help deaf children about our approach and its achievements. Provides information, advice and practical help to parents to help their deaf child to listen and talk.

National Deaf Children’s Society (NDCS)

Provides advice and information on all aspects of childhood deafness, including education, benefits, technology and equipment. Support with benefits claims, Disability Appeal Tribunals and special education needs tribunals/appeals.

The Sussex Deaf Association

Provides communication support, advocacy, assistance with benefit forms, Deaf Awareness Training, British Sign Language courses, social groups and outings.


14. DISABILITY ADVICE

Asian Peoples Disability Alliance (APDA)

They aim to provide appropriate services to Asian disabled people and their carers and families that mainstream service providers are unable to provide.

Disability Law Service

DLS provides free advice via information, factsheets, training courses and telephone and written advice.

Disability Living Foundation

Find out about the many ways DLF helps the general public and healthcare professionals find out about daily living equipment and assistive technology. We don't sell any products, but we can help you find the people that do!

Disability Rights UK

Disability Rights UK offers a range of advice and support for Benefits, Education, Skills and Employment and Independent Living.

Independent Lives

Independent Lives provide a range of support services for people with disabilities, care needs and caring responsibilities to enable them to lead full, active and independent lives. Our core work focuses on providing a Direct Payments support service to help people arrange and manage personalised care and support.

MENCAP

Support organisation for learning-disabled children and their families.

PHAB (Physically Disabled and Able Bodied)

Promotes and encourages disabled and non-disabled people to come together on equal terms to achieve complete inclusion within the wider community.

United Response

Provides a range of services for people with learning disabilities, mental health or physical needs, ensuring they have the opportunity to live their lives to the full.

Signposts

Charity that supports people with learning difficulties to live independent and fulfilling lives in the community. Also helps new parents/carers of children with learning difficulties to help them have a positive experience of parenting. Helps with accessing information about benefits, health, housing, getting a job, education, socialising and friendships.


15. DOWNS SYNDROME

Downs Syndrome Association

Downs Syndrome Association has information and advice for parents with Downs Syndrome as well as help and support for people with Downs. Help and advice for families, carers and professionals.

Down Syndrome Educational International

Down Syndrome Education International is a UK-based charity that transforms the lives of young people with Down syndrome by improving understanding of their particular learning needs and by helping families and professionals to provide effective support, early intervention and education. Our goal is to improve outcomes for all children with Down syndrome, helping them to lead more independent, productive and fulfilling lives.

Down Syndrome OK

Offering help and support and an ever-expanding source of useful information and knowledge, relevant to parents of a child or adult with Down's syndrome.


16. DYSLEXIA/DYSCALCULIA

Dyslexia Action

The biggest dyslexia charity in the UK providing a wide range of services to people of all ages who struggle with literacy.

British Dyslexia Association

Helpline offering impartial advice, information and support. Campaigns for a dyslexia-friendly society. As a parent or carer for a child with dyslexia, you want to provide the best possible support for them. The information contained within this section looks at indicators of specific learning difficulties, as well as supporting your child both at home and within the education system to ensure that they achieve the best possible outcomes.

The Dyslexia-SpLD Trust

A collaboration of voluntary and community organisations with funding from the DfE to provide reliable information for parents, teachers, schools and the wider sector. The Trust aims to ensure that in order for children with Dyslexia/ SpLD to succeed in school there is 1) A focus on high quality teaching practices by all teachers, 2) Access to specialist teachers and resources 3) Early intervention and early action for those at greatest risk of failing and 4) Acceptance of the importance of Dyslexia/SpLD as a major contributor to educational under achievement and a strong risk factor for limited life opportunities.

Helen Arkell Dyslexia Centre

Provides a wide range of assessments, support options and professional courses. In the broadest possible sense Helen Arkell encompasses a whole spectrum of learning. At one end, individual dyslexics come here to learn about themselves, their challenges and how to compensate for them. At the other, teachers and educationalists come here to learn about dyslexics and how to deliver the dyslexia strategies that will help them achieve their potential.

Dyscalculia Centre

We have a series of books that are used by thousands of teachers, assistant teachers, parents, and friends to help people who have dyscalculia. They have help and support for parents, teachers as well as doing testing for dyscalculia.


17. DYSPRAXIA

Dyspraxia Foundation The Foundation seeks every opportunity to increase understanding of Dyspraxia, particularly among professionals in health and education and encourages its local groups to do the same. It continues to encourage the smaller local groups to thrive and develop their own ideas and to distribute information and fund raiser for themselves. Advise, information and support relating to dyspraxia.


18. EDUCATION ADVICE

ACE (Advisory Centre for Education)

We aim to offer a comprehensive range of advice and information on education issues. Our information is based on current education law and guidance and covers state funded education for children aged 5-16 years in England only. Free advice on aspects of state education.

Civil Legal Advice (Legal Aid)

We are a helpline that can provide free advice on educational law matters for anyone who is eligible for legal aid. You can contact us by phoning 0345 345 4345.

Contact A Family

We provide information, advice and support. We bring families together so they can support each other. We campaign to improve their circumstances, and for their right to be included and equal in society. SEN advice service for parents and families.

CORAM Children’s Legal Centre

Coram Children's Legal Centre is the UK's leading children's legal charity. We are committed to promoting children's rights in the UK and worldwide. We provide free legal information, advice and representation to children, young people, their families, carers and professionals, as well as training and consultancy on child law and children’s rights. Provides free legal information, advice and representation to parents, children and young people.

Disability Matters

A free e-learning tool for the UK workforce.

IPSEA (Independent Panel for Special Education Advice)

Advice and information to parents whose children have SEN. Also provides free representation service for parents appealing to the SEND Tribunal.

NASEN (National Association for Special Educational Needs)

Nasen is the UK’s leading organization supporting those who work with or care for children and young people with special educational needs or disabilities (SEND).

National Children’s Bureau (NCB)

The National Children's Bureau is a leading charity that for 50 years has been improving the lives of children and young people, especially the most vulnerable. We work with children and for children, to influence government policy, be a strong voice for young people and practitioners, and provide creative solutions on a range of social issues.

Rathbone

A UK-wide voluntary youth sector organisation providing opportunities for young people to transform their life-circumstances by re-engaging with learning, discovering their ability to succeed and achieving progression to further education, training and employment.

19. EMPLOYMENT AND TRAINING ADVICE

Camelia Botnar Foundation

We endeavour to train and educate 16-21 year olds who are in problematic situations at home due to circumstances outside of their control. They are enabled to improve conditions in their lives and to develop as individuals. We offer life changing opportunities, gaining a second chance at success and learning a skilled trade, obtaining qualifications and building up some savings.

Disability Employment Advisers (Job Centre)

Disability Support Advisers, provided through the Job Centre, can give you help and support regardless of your situation. They can help you find work, or to gain new skills if you have no work experience. Can provide an Employment Assessment which produces an action plan to help you achieve your job goals.

EmployAbility

Works with disabled university students and graduates to ease the transition from education into employment. Offers free support, advice and guidance throughout the entire recruitment process and beyond. Also runs a wide range of internships and graduate recruitment programmes on behalf of public sector organisations.

Enham Trust

Provides a range of services to enable people with disabilities or additional needs gain the skills and knowledge they require to make life changes. Helps people live more independent lives by gaining employment.

The Prince’s Trust

Helps 14-30 year olds through training, mentoring and by providing financial assistance.

Prospects Employment Support

The National Autistic Society’s employment and training service for people with an autistic spectrum disorder (ASD) who wish to work. Includes job preparation courses, in-work support and student support. Also works with employers to help with the recruitment, training and retention of staff with ASD.

REMPLOY REMPLOY is the UK’s leading supplier of employment opportunities for disabled people, providing jobs and training.

Sullivan's Heroes

Sullivan’s Heroes is a charity offering fundraising support and financial assistance for families raising essential funds towards vital home adaptations for a disabled child. Find out more.

Dylsexia at work - website you will need a login to be able to access the resources


20. EPILEPSY

Epilepsy Action

We exist to improve the lives of everyone affected by epilepsy. If you would like to talk to someone about epilepsy, our trained advisers are here to help. We offer confidential, personal advice and you can tell us as much or as little as you want. No question is a silly question.

Epilepsy Society

Epilepsy Society is the UK’s leading provider of epilepsy services. Through our cutting edge research, awareness campaigns, information resources and expert care, we work for everyone affected by epilepsy in the UK.

UK Epilepsy

Their aims are to offer support and advice to people involved with epilepsy, suffers, parents, siblings, families and carers.

Young Epilepsy

Whether you have a child who has been recently diagnosed or if you have a school-aged child with epilepsy, there are many challenges that parents and carers can face. This includes supporting your child through learning more about the condition, dealing with your child's school or understanding what happens to the health services when your child grows up. We have a range of information and support material which can help make the adjustment much easier. Information service for families and professionals.


21. EQUIPMENT

Action for Kids

Aims to combat the problems facing severely disabled children and their families. Provides mobility aids not available on the NHS for young people with any disability aged 0-26 in the UK. As well as advice and support on building their skills, looking for work and becoming more independent.

020 8347 8111

Children Today

Children Today is a charity that raises funds to provide specialised equipment and services for children and young people with disabilities throughout the UK

In Car Safety Centre

Safety of children in cars should be as simple as purchasing a seat and using it. This statement alone, suggests that there are issues with suitability, fitting and understanding the product. For this reason we offer a range of products and services that help the parent and support Road Safety Professionals.

From a simple understanding of how and if a seat fits, to a full appreciation of children’s car safety, In Car Safety will offer you support through its in house training, field support and full range of products.

GBL Wheelchair Services Ltd

Sells powered and manual wheelchairs and scooters, both new and second-hand. Also hires out manual wheelchairs. Can supply chairs and hand bikes, walking aids and ramps.

Go Kids Go!

Aim to aid and support children who use wheelchairs and their families. Try to ensure that children have the right equipment and run training courses for children using wheelchairs for outdoor mobility.

Lifeline 4 Kids

We were formed for one purpose -- to provide equipment to help improve the quality of life for children with disabilities and special needs irrespective of race or creed. For the individual child we provide the full spectrum of specialised equipment such as electric wheelchairs, mobility aids and varying items including specialised computers and sensory toys.

Medical Engineering Resource Unit (MERU)

MERU designs and builds assistive equipment for children and young people with disabilities.

Motability

The Motability Scheme enables disabled people to get mobile by exchanging their mobility allowance to lease a new car, scooter or powered wheelchair.

QEF (Queen Elizabeth Foundation)

Information and assessment service on all aspects of outdoor mobility. Driving ability, car adaptions and electric wheelchair assessments and training for disabled people including residential driving tuition. Register of driving instructors for disabled people.

REMAP (Rehabilitation Engineering Movement Advisory Panel)

Remap panels has member engineers, who apply technology and basic skills to the design and production of aids and the adaption of existing aids to meet the needs of people with disabilities, where such aids are not commercially available. There is no charge to the client to whom the aid or device is given.

Whizz-Kidz

We want all disabled children's lives to be full of fun, friendship and freedom. For us, the wheelchair is just the start - we also run clubs, camps, wheelchair skills training and work placements to help develop confidence and independence. Whether you're a disabled young person, a parent or carer, here is where you'll find out about our services and how we can help you.

WizzyBug

Provided FREE through our UK Loan Scheme: Powered wheelchair for children aged 14 months - 5 years; Supplied on loan for as long as needed; Grows with the child; Use indoors and outdoors; Fun design; Easily dismantled for transportation and Joystick and switch options available.


22. EXCLUSION/INCLUSION

Centre for Studies on Inclusion Education (CSIE) Help and support for children who have disabilities or learning difficulties who wish to remain in mainstream education.


23. FINANCIAL SUPPORT/ADVICE

Disability Rights UK

Disability Rights UK are the acknowledged experts on benefits for disabled people

The Family Fund

We are the UK’s largest provider of grants to low-income families raising disabled and seriously ill children and young people.Helps families of disabled or seriously ill children under 16. Gives grants and information related to the care of the child including holidays, leisure, laundry etc.

Independent Lives Many people in West Sussex are designing their own care and support with information, advice and guidance from Independent Lives.

League of the Helping Hand

Provides grants for people who are in financial need due to illness and disability. Applications via professional person who knows details of finances and personal circumstances.

REACT

An independent charity which helps children with a life-limiting illness that are living at home with their family. We provide individual financial assistance where possible for assist with equipment and facilities, to help with care and treatment, fares to hospital appointments, and domestic items which may not be available from other sources and mobile home holiday and lastly funeral expenses.


24. GENERAL/MULTI-PURPOSE SERVICES

Barnardo’s Our knowledge of the local communities we work in allows each of our children’s centres to be a trusted provider of local services, supporting and informing parents and carers. We are one of the largest charity providers of family placement in the UK and offer a diverse range of services, meeting the ever-changing needs of children and young people.


25. HOUSING

Consensus Support

A leading provider of specialist support services for individuals with learning disabilities and complex needs. They provide supported living, residential services and resources centres across the UK.

The Disabilities Trust

Providing personal care and specialist housing for people with special needs. Meets the needs of people with autism, acquired brain injury, profound physical or learning disability.

Southdown

A specialist provider of support and housing services to vulnerable people across Sussex. Ethos of working alongside clients to coach and empower them to develop the skills and confidence to take action and responsibility to increase their independence.


26. INTERNET/ONLINE SAFETY

Internet Matters

Whatever their age, we can help you to find out more about what your children might be doing online and give you some simple, practical and easy advice on the steps you can take as a parent to keep them as safe as possible.

VPN Vanguard

This article gives you advice and tips on some of the things that you need to consider to keep both your own electronics safe, and most importantly, your children.


27. LIFE LIMITING & LIFE THREATHENING ILLNESSES

Dreams Come True Charity

We are a national UK charity that works hard to make dreams come true for children and young people with serious and life-limiting conditions aged between 2 and 21 years old. Fulfilling a dream can help a child or young person to think beyond their illness or disability and focus on something highly positive and empowering. The experience can create amazing memories for entire families and our friendly and knowledgeable team are there to help every step of the way.

Make-A-Wish Foundation UK Grants the wishes of children aged 3-17 years who live with life-threatening illnesses.

Newlife

Thousands of disabled and terminally ill children would go without essential equipment, if it wasn't for people just like you, who support Newlife.

Newlife is the UK's largest charity funder of children's specialist disability equipment. We also run the UK's only national emergency equipment service, for terminally ill children.

Newlife Nurses support thousands of families, we campaign for policy change and we fund targeted medical research, to improve child health.

Miracles

Miracles mission in the UK is to provide a Rapid Response help source for the ever-increasing number of people who fall through the net of other aid agencies and can find nowhere else to turn. Crisis funding in cases of supreme need for children with life threatening illnesses.

Rainbow Trust

Rainbow Trust supports over 25% of the 6,000 families in England who have a child aged 0-18 years of age with a life threatening or terminal illness and need the bespoke support we offer. We support the whole family 24/7, 365 days a year, regardless of diagnosis.

REACT

An independent charity which helps children with a life-limiting illness that are living at home with their family. We provide individual financial assistance where possible for assist with equipment and facilities, to help with care and treatment, fares to hospital appointments, and domestic items which may not be available from other sources and mobile home holiday and lastly funeral expenses.

Shooting Star Chase

From babies to young people up to the age of 21, we support families from diagnosis to end of life and throughout bereavement with a range of nursing, practical, emotional and medical care. Receiving hospice care does not mean that a child’s death is imminent – in fact many who visit are living active lives but wish to have some time in a supportive, caring environment. We support the whole family, offering a bespoke service to suit each member’s individual needs.

Starlight

Foundation which brightens the lives of critically, chronically and terminally ill children between the ages of four and eighteen, by granting: celebrity wishes, experience wishes, gift wishes or travel wishes. Applications in writing.

The Harvey Hext Trust A Siblings Wish

A charity supplying bespoke personalised wooden memory boxes to children who have lost a sibling

The Sussex Snowdrop Trust

A charity which supports children with life-threatening illnesses and their families. Provides equipment and general support to the families by sending out nurses or specially screened volunteers. Covers area east of Emsworth to Littlehampton and north to Midhurst.

Together For Short Lives

Together for Short Lives is the leading UK charity that speaks for all children with life-threatening and life- limiting conditions and all who love and care for them. We aim to make a lifetime of difference to these children and their families. We offer advice and support for parents and professional caring for a child with life-threatening and life-limiting condition.

When You Wish Upon A Star

Aims to fulfil wishes for any child aged 2-16 years who has a life threatening or terminal illness. Also have holiday homes and caravans in Britain, Spain and Florida.


28. M.E. (Myalgic Encephalopathy)

Association of Young People with ME

The Association of Young People with ME (AYME) is a UK charity that provides support for children and young people aged up to 26 who have ME/CFS. AYME is also here to help and support parents, carers and professionals in health, education and social care. Their site shares some of the wide range of information and experience we have available, including features on health, education and real life accounts from young people with ME/CFS.

ME Association

The ME Association (The MEA), founded in 1976, funds and supports research and provides information and support, education and training. Provides support for people with ME and those who live with or care for them.


29. MENTAL HEALTH

Calmzone

The Campaign Against Living Miserably (CALM) is an award-winning charity dedicated to preventing male suicide, the single biggest killer of men under the age of 45 in the UK. In 2015, 75% of all UK suicides were male.

Mental Health Foundation

We are working for an end to mental ill health and the inequalities that face people experiencing mental distress, living with learning disabilities or reduced mental capacity. Online resource offering an A-Z directory of services for people with mental health problems.

MIND

Offers training, information and advocacy services.

National Self Harm Network

National charity supporting sufferers. Raises awareness of self-harm, underlying causes, triggers and ways to offer support.

OCD Action

We all know how isolating OCD can be, it can make you feel trapped and cut off from the rest of the world. In this section of our website you can find out about the support that is available to anyone affected by OCD. Finding the right support and building up a support network can make a massive difference; it can give you the tools and the strength to fight back and make you feel that you are not facing OCD on your own.

The Mix

The Mix is here to take on the embarrassing problems, weird questions, and please-don’t-make-me-say-it-out-loud thoughts that people under 25 have in order to give them the best support through our digital and phone services.

Samaritans

We offer a safe place for you to talk any time you like, in your own way – about whatever’s getting to you. You don’t have to be suicidal.

Young Minds

Charity aiming to improve the emotional wellbeing and mental health of children and young people. Free, confidential telephone helpline for anyone worried about the emotional problems, behaviour or mental health of a child or young person.


30. MUSCULAR DYSTROPHY

Muscular Dystrophy UK

A national charity which researches into treatments and cures for people affected by any of the conditions known as muscular dystrophy or by a related neuromuscular disorder. Provides expect medical care at Muscle Centres; information; advice; a team of Care Advisers and financial assistance with essential equipment.


Pathways to Adulthood

Preparing for Adulthood

The Preparing for Adulthood programme (PfA) is delivered by the National Development Team for inclusion (NDTi).

Together Matters

Together Matters is a small organisation built on the belief that talking and working together help to make better things happen in the lives of people with learning disabilities and their families.

31. SEN GENERAL ADVICE

Contact Contact provides information and advice t families with disabled children throughout the nation. They help families to find the right support they need. Contact can also bring families together to support one another as wll as help with campaigns and fundraisers.

OAASIS

Advice, information and publications on SEN support.

SOS!SEN

SOS!SEN is a national charity aiming to empower parents and carers of children with SEN to tackle successfully themselves the difficulties they face when battling for their children’s rights. Free, independent and confidential helpline for parents.

KIDS South East

A national charity dedicated to helping children and young people with disabilities and special needs develop their skills and abilities and to realise their potential.

Special Kids in the UK Provides parent to parent support and information/advice. Offering friendship and support. Via online access

CSIE (Centre for Studies on Inclusive Education) CSIE is a national charity that works to promote equality and eliminate discrimination in education.


32. SENSORY/MOTOR SKILLS NEEDS

Jigsaw Occupational Therapy Occupational therapy for children and young people in the South East of England. Provides assessments and direct therapy individualised to a child’s needs, as well as training for schools, parents and other professionals.

Sensory Solutions at Home

Tailor made sensory packages for children with individual needs. Blackout caves, fibre-optics, bubble tubes, fluorescents, weighted products. Available to rent in your own environment. Specialist aids and soft play available on request.


33. SIBLINGS SUPPORT

SIBS

Aims to enhance the lives of siblings of disabled children and adults by providing them with information and support.

YoungSibs is for children and young people who have a brother or sister who is disabled, has special educational needs or a serious long-term condition. It is for siblings in the UK aged 6 to 17.


34. SPEECH AND LANGUAGE DIFFICULTIES

1 Voice

1 Voice is a network for families to communicating together. They recognises that a communication disabilities can be isolating for the children and their families.

AFASIC (Association for all Speech Impaired Children)

Afasic supports parents and represents children and young people with speech, language and communication needs (SLCN).

ICAN

A charity for pupils with speech and language difficulties.

The Speech Centre Specialists in speech technology for both the professional and disabled user market.

Talking Point An online resource all about children’s speech, language and communication skills.

35. SPINA BIFIDA/HYDROCEPHALUS/ SPINAL MUSCULAR ATROPHY

SHINE

They offer advice, practical support and information to people with spina bifida and their families.

Spinal Muscular Atrophy Support UK

We offer free confidential information, emotional support, practical advice and guidance to anyone affected by Spinal Muscular Atrophy who is living in the UK. We also provide free information and support to health, education and social care professionals.

SASBAH – Sussex Association for Spina Bifida & Hydrocephalus

Provides support for people with spina bifida and/or hydrocephalus in East and West Sussex. May be able to provide welfare grants. Field workers offer advice, support and friendship.


36. TOURETTES

Tourette’s Action Tourette’s Action works in England, Wales and Northern Ireland and is the leading support and research charity for people with Tourette syndrome and their families. We want people with TS to receive the practical support and social acceptance they


37. CHROMOSOME DISORDER

Unique Our mission is to inform, support and alleviate the isolation of anyone affected by a rare chromosome disorder and to raise public awareness.


38. NEUROLOGIC CONDITIONS

Cerebra

Founded in 2001, Cerebra is a unique national charity that strives to improve the lives of children with neurological conditions, through research, information and direct, on-going support.


39. Nutrition

First Steps Nutrition

An independent public health nutrition charity that provides information and resources to support eating well from pre-conception to five years.