Care, Education and Treatment Reviews (CETRs) For Children and Young People

Page Updated: 29th September 2021


What is a Care, Education, and Treatment Review (CETR)?

The policy and guidance around CTRs comes from the Transforming Care programme. Transforming care is all about improving health and care services so that more people with a learning disability and/or autistic people can live in the community, with the right support, and close to home. This means that fewer people will need to go into hospital for their care.

A CETR is a meeting called when a young person who has a learning disability or autism is considered to be at risk of a mental health inpatient hospital admission. The CETR is led by a panel, the chairperson plus the two independent experts; an independent clinical expert and an independent expert by experience (lived experience of people and families with learning disabilities, autism, or both), all of whom aim to review all existing evidence, reports and assessments.

The CETR brings together those responsible for commissioning and those providing services alongside the young person and their family or carers. They seek the views and experience of the family and carers and the young person themselves to ascertain whether or not all system resources have been maximised to support the young person to remain in their local community. They also seek to understand how local services are able to support the young person and identify and barriers to accessing that provision. They make suggestions as to any other options or opportunities which could help the young person live and thrive in the community.

CETRs, at their heart, have a set of principles that should always be upheld. These are:

  • Person centred and family centred
  • Evidence based
  • Rights led
  • Seeing the whole person
  • Open, independent and challenging
  • Nothing about us without us
  • Action focussed
  • Living life in the community

    Consent MUST be given to hold a CETR by the young person or responsible adult or organisation with parental responsibility if the young person is not competent to give consent.

    Types of CETR:

    CETRs are convened by the responsible Health Commissioner. For children at risk of a potential admission, this is the children’s lead commissioner for the local CCG (Coastal West Sussex, Horsham and Mid Sussex or Crawley CCG). For children who are already in a Mental Health Hospital Bed, the lead commissioner is specialised commissioning at NHS England.

  • An urgent CETR is called if a young person is at imminent risk of an admission. In order to facilitate this at short notice these are often teleconferences. These are sometimes called ‘blue light’ CETR’s.

  • If a young person is admitted to hospital, an inpatient CETR must be held within 10 days.

  • A community CETR is held for a young person who is considered to be at significant risk of requiring an inpatient admission, or where there is a significant risk of a family or placement breaking down.

    How can it help?

    The aim of the CETR is to bring a person-centred and individualised approach to ensuring that the care and treatment and differing support needs of the person and their families are met and that barriers to progress are challenged and overcome so that the child/young person avoids admittance to mental health inpatient hospital.

    CETR’s are driven by the NHS, but the involvement of local authority and education services in the CETR process and its outcomes is integral to improving care, education and treatment of children and young people with learning disabilities, autism or both and their families.

    At the CETR a key lines of enquiry form (KLOE) is completed. This is anonymised and sent to NHS England for monitoring. An action plan with timescales is produced to support the young person and their family.

    How can it be accessed?

    Anyone can request a CETR, including the young person and the family or carers of that young person and professionals working with the young person. Although it is most likely that the young person will already be known to services and be on the Transforming Care Dynamic Risk Register this is not always the case.

    Requests for a CETR for children and young people in West Sussex, should be made via email to the CETR co-ordinator at [email protected].

    The CETR request form will be required as part of the request. Please note that the form needs to be emailed to [email protected] NOT Jane Taylor as per the form.