Sussex Ehlers-Danlos Syndromes and Hypermobility Disorders (SEDS) CIC


SEDS is a charitable social enterprise which actively supports those who are looking for providers of activities, support and services because every person with EDS symptomatic hypermobility in Sussex. Actively supports children, young people and family/carers to live a more fulfilled life, by being there, providing signposting resources and helping with activities as well as hobbies. EDS/JHS are complex connective tissues syndromes that affects people in different ways. It is multisystemic .

What we do:

  • Community social enterprise that actively supports children, YP , parents/carers, who are looking for signposting/providers for activities, support / education because every young person with EDS/HSD in Sussex deserves to live a more fulfilled life.
  • We can provide awareness training, speaking at health or education events and conferences for co-occurring conditions such as neurodiversity with qualified and first person experienced knowledge. For schools and parent groups.
  • We aim to provide meetings both online and in person for parents/carers of EDS Hypermobility/neurodivergent children and young people in all areas of Sussex.
  • We provide EDS and hypermobility symptomatic families accessibility for education, health, social care and for transport including trains, aviation and other organisations throughout Sussex.
  • We provide some half and fully funded EDS and Hypermobility aware therapies, activities, equipment and hobbies and activities for children with symptomatic hypermobility and their close family members or carers.

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Age Range: 0–26

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