PANS PANDAS UK
Service
PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.
One estimate suggests that up to 1 in 200 children suffer from this condition.
Medical Guidelines https://www.panspandasuk.org/medical-guidelines
What we do:
- Resources for parents including diagnostic criteria and details of local support groups, Resources for Medical professionals Resources for teachers and Schools Teacher training package
- Facebook group for parents/caregivers, Facebook group for Young People age 12-17 with the condition Facebook group for Adults
- Links to further Research, Advocacy and support from the charity
- Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions. Affected children can be in mainstream, alternative, specialist provision or electively home educated.
- All of West Sussex covered. We provide support via our Facebook group PANS PANDAS UK.
Our users say:
"When PANS PANDAS came on to our radar, I contacted the charity and was very quickly given the information that I needed and signposted to where we could get help. With the correct treatment provided, we can see improvements in our child's symptoms."
Age Range: 4–19
Free to use?
Contact Details
07425 856 181
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