Information on medication and the organisation 'STOMP'
Please note that this page is in development and has just been added.
For some children, young people and adults taking psychotropic medicine may be the most appropriate intervention at that time. This page has been added to the Local Offer as we want to provide you with impartial information, advice and support so that you can make an informed decision for what is best for your child and young person. We are not recommending a pathway of treatment. Every child and young person is unique and in different therefore it can be a challenge to present this information to you. In addition it is important for you to consider the type/dose/duration of treatment in addition to what other support/therapies may be planned now and in the future for the individual in making any decision.
What does STOMP stand for?
"STOMP stands for stopping over medication of people with a learning disability, autism or both with psychotropic medicines. It is a national project involving many different organisations which are helping to stop the over use of these medicines. STOMP is about helping people to stay well and have a good quality of life." NHS England
STOMP is part of the Transforming Care Programme which focuses on improving health and care services so that more people can live in the community, with the right level of support.
Often children and young people may have been prescribed multiple psychotropic drug use from a specialist. The monitoring of the treatment of medication is then often passed to primary care e.g. GPs where then child/young people may not be monitored as closely. You may be interested in checking the Expert Parent Programme which aims to help parents understand the health system better and benefit more from the services their children use. This programme was developed by parent carers and NHS England professionals working together. Developed with funding support from the Department of Health, the Expert Parent Programme drew on evidence of the positive impact of parent-led training and empowers parents of disabled children and young people to become more confident and resilient when engaging with health services. The national programme is run by Council for Disabled Child and delivered locally through the West Sussex Parent Carer Forum.
Find out more:
Challenging Behaviour
Please find some links to resources here:
My child/young person is already currently taking psychotropic medication/we are considering this as an option
| Further resources |
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| Whether your child or young person is or isn't taking psychotropic medication you may find viewing this website Medication Pathway helpful. The resource has been created for families and was funded by NHS England and includes a glossary of terminology. |
| Preparing to visit a doctor to talk about psychotropic medication This resource is a guide for a support worker who is accompanying a person with a learning disability, autism or both to a GP consultation appointment to talk about psychotropic medication. |
| Easyhealth was made so that people know where to find ‘accessible’ health information . ‘Accessible’ information is information that uses easy words with pictures. |
| Doc Ready Doc Ready helps you get ready for the first time you visit a doctor to discuss mental health. |
You may also find it helpful to be aware of what services are being commissioned in West Sussex offering support to children/young people here. There are also other services listed on our Local Offer that may be able to offer support some may be private and therefore will be a cost to get support.
If the child/young person is still at school/college they will require a graduated approach which draws on very detailed interventions and support approaches and specialist expertise in successive cycles of assessment, planning, intervention and review; ensuring interventions match needs and may require an Education, health and care plan. To find out more about Education, Health and Care Plans, please see the relevant factsheet on the SEND Information, Advice and Support website.
If you are a professional (GPs, Teacher, Public health nurse, Emotional Wellbeing Lead (EWB), and Support workers) working with a child/young person you may find it helpful to seek support from the West Sussex Community Mental Health Liaison Service (CMHL). The service is for professionals only, that work with children and young people. This service cannot be accessed be parents, carers or young people.
Get involved with the campaign
The West Sussex Local Offer and Parent Carer Champions are wanting to become more involved by making sure we promote the information and resources linked to STOMP.
Whether you are a young person, parent carer or work with families see how you could become involved by checking out the NHS England website for ideas.
