Complex Health Resources and Clothing

The number of disabled children and young people with complex needs and/or life limiting conditions is increasing is the UK. Children, young people and their families will require support from statutory services across health, education and social care.

Below are some resources for further information:
Understanding the needs of disabled children with complex needs or life-limiting conditions This report by the Council For Disabled Children and The True Colours Trust looks at what we can learn from national data on the numbers of children with complex needs or life-limiting conditions.
A Guide to Support Families of Children with Complex Needs This guide is here to help you and to help your professionals understand what your life is like. It is for families, no matter how they are made up, who have a child with health complications, disabilities and uncertain futures. It has been written by a group of professionals (some of whom are also parents) in Canada, Australia, New Zealand, South Africa and the United Kingdom.
The Foundation for people with learning disabilities (part of the Mental Health Foundation) have worked in Blackpool, Nottingham, West Sussex and Gloucester were they gathered learning and examples of best practice for our free downloadable guide 'Children and Young People with Complex Health Needs - a one-stop booklet for families'.
CONTACT for families with disabled children, have some helpful resources and guides free for parent carers. Guides are always very well received and researched material is nationally acclaimed.

Clothing

Clothing
Marks and Spencer have a private Facebook group who work with M&S to get Special Needs Clothing for Children in mainstream shops called M&S and Me. Special needs clothing for Children M&S have an easy dressing page for kids
Dunnes An online exclusive range for additional needs clothing covers sizes for 2-14 year olds
Fledglings specialist clothing for gastro fed children specifically Joey vests that do up over the tummy.
Disabled Clothing A wide range of clothing for the disabledincluding vests, pyjamas and bibs.
Jett Proof calming sensory clothing are made from a breathable sensory fabric and can be worn discreetly under regular clothing. JettProof helps children and adults to regulate their body and filter sensory information, while keeping their sensory system calm. JettProof has the ability to positively transform the lives of children and adults living with Autism/Aspergers, ADHD, Sensory Processing Disorder and Anxiety.
BILLY Footwear Footwear that incorporates zippers that go along the side of the shoes and around the toe, allowing the upper of each shoe to open and fold over completely. Thus the wearer can place his or her foot onto the shoe footbed unobstructed. Then with a tug on the zipper-pull the shoe closes and secures overtop the user's foot.Billy Footwear

Bags

TubieeGo Adapted bags for tube-feeding