Joint Hypermobility Syndromes and Elhers Danlos Syndromes

Page Updated: 19th October 2021

What are Joint Hypermobility Syndromes?

Hypermobility is when a persons joints are very flexible. Sometimes people call hypermobility being double jointed. Hypermobility is common and lots of people live with it and it causes them no problems. If you have joints that are more flexible than others and experience pain from this or other symptoms, then you should speak to your GP. The NHS website has more information on joint mobility syndrome.

What is Ehlers-Danlos Syndromes (EDS)?

Ehlers-Danlos syndromes are a group of conditions that effect the connective tissues throughout a person’s body. Connective tissues are the thing that hold all the different parts of your body together. They provide support to the skin, tendon, ligaments, blood vessels, internal organs and bones. There are currently 13 different types of EDS which can effect people in different ways. Most of these are extremely rare. More information on the different types of EDS can be found on the EDS Support UK website.

Characteristics of Ehlers-Danlos Syndromes

A common characteristic of some types EDS is joint hypermobility, because of this joints can also dislocate easily as well as create aches and pains in these areas. People with EDS can sometimes think of these pains as normal because they have had to cope with them for their entire life. Dealing with this can also lead to fatigue.

Another common characteristic is stretchy skin that may break or bruise easily.

Further information and support

Local Support

  • Sussex Ehlers-Danlos Syndromes and Hypermobility Support voluntary community group (SEDS) – based in Sussex SEDS is a support group to help people with Elhers-Danlos Syndromes or Hypermobility Disorders find and make use of services useful to them. They also publish blogs and write on a range of topics relative to its community. Read their Local Offer service card for more information.

    National Support

  • Ehlers-Danlos Support UK
  • Hypermobility Syndromes Association
  • School Toolkit for EDS and JHS